Starting in 1980

The fist signs of this God-forsaken disease grabbed me when I was not quite 25 years old by way of double vision, slurred speech, and general weakness on the right side. Back in those days (the early ’80’s), there were neither MRI’s nor Disease Modifying Drugs, so after ruling out St. Louis Encephalitis (I am from Houston where we grew our mosquitos to be the size of Buicks), there was nothing to do but wait until I had another ‘event.’ And over the years, I’ve been completely blind in one eye for up to six weeks a couple of times, and I’ve fallen more times than I can count, resulting in stitches, torn tendons, and lots of surgeries to put stuff back where it belongs.  Too much nonsense to remember.

So, here I am some 38 years later, ready for HSCT in Mexico in 28 days.  I’ve tried it all.  Been on a couple of DMD’s costing up to $60K per year, diets, more diets, food plans, Low-dose Naltrexone, supplements of every kind and simple lifestyle changes…you name it, I’ve done it.  Actually I did like massage, but it didn’t to much to alleviate symptoms.

The only thing I won’t do is give up.


So let us not grow weary of doing what is good; for if we don’t give up, we will in due time reap the harvest.

Galations 6:9 (CJB)

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: